baby, it’s cold outside!

Just as quickly as it stormed through, the snow is outta’ hea and on to it’s next victim (the East Coast). And while the skies are clearing in my neighborhood, the temperature is dropping like a hockey puck at Nationwide Arena. The Weather Bug on my Blackberry says it’s 22 degrees and that little insect never lies. Where’s my sweater, anyway?

Good thing our strong, macho teen-age friend, Justin, got on the driveway again for us today or it would be a 12″ sheet of ice. I ventured out as far as the front porch this time to take these pretty little shots of the sun filtering through the snowy tree branches. We all need a little sun with our massive amount of snow, right?

decked out

This is what 10 inches and counting of snow looks like on our deck…

It’ll be awhile before we fire up the grill again.

weather event

Snow is so beautiful while it’s falling, very peaceful and hypnotic; not so much when it’s piled up on the roads during rush hour. There was nothing I hated more than dressing for an early-morning meeting and having to bundle my perfectly-coiffed self up in a tight-fitting coat with mukluks and mismatched gloves. The defroster in my car never quite did its job so I’d be hunched over, peering through a tiny space just big enough to see where I was going. Then I had to contend with the semi trucks on the freeway, whizzing past me and dumping a load of slush up onto my windshield. Sometimes my washer fluid worked, sometimes it didn’t. It was always an adventure, to say the least.

I’ve been fortunate this year to be in retirement mode so the days of scraping my car and sliding my way home on the highway are behind me. Thank God for minor miracles – I am more grateful for this respite from the snow than any other baby-boomer perk. I can now sit in my den and stare out at the big, white fluffy flakes instead of putting my life at risk.

Today, we are having a “weather event” as it’s been coined by the 10TV News people. It’s just snow, people. It snows in the winter here. It snows when it’s cold out. It snows when its rush hour. It’s part of living in this region of the country. It’s why I used to love to go sledding when I was a kid. It’s why there’s a “Winter” Olympics every four years. It’s really just precipitation in the form of ice crystals – if it wasn’t snowing, it would be raining cats and dogs and my basement would be flooding. It’s why I just paid one of my friend’s teen-aged son and his buddy $20 for shoveling it all off my driveway, sidewalks, and walk way – the best money I ever spent.

I’ve finally traded my ice scraper for a camera and for that, I’m doubly thankful. These were all taken through the windows of my cozy warm house of the neighbor’s yard, our back yard, the side yard, and wherever else I had a shot. My own little winter wonderland within a stone’s throw.

Ben’s Big Apple News!

Instead of me trying to explain the wonderful news received by the Brewer Family yesterday during Ben’s initial evaluation in NYC, here is the post from his mom’s blog. I’m still crying big crocodile tears…

Wednesday, February 3rd, 2010
“The Day the Music Died”

Today in history, February 3, 1959, marks the tragic airplane crash that took the lives of Buddy Holly, Richie Valens, and the Big Bopper at the peak of their musical careers. While I was not in existence at this point in time, being a rock and roll music aficionado dictates that this event has impacted me on a profound level. Plus, I love the Don McLean song “American Pie”, which commemorates the tragic event. I know this song by heart and can even strum a bit of it on the guitar. It’s always a hit around the campfire.

While the events of what happened in 1959 are, indeed, tragic, my sorrow surrounding this event is completely overshadowed by my immense joy. We learned today, February 3, 2010, that our fine young son, Benjamin, is in a good position of being CURED of this whole neuroblastoma mess. It’s going to take a while and there are some steps we weren’t expecting, but the overall outcome should produce a “long-term-on-earth” Ben. The minute Dr. Kramer made this statement, the tears started rolling. THANK YOU, JESUS!

Admittedly, I’m not crazy about this New York City place. I might reach a certain comfort level in time, but for now, I feel completely claustrophobic. I’m more of a Wyoming girl – preferring a total population of 500,000 compared to this itty-bitty island with its millions of people and crazy drivers. Someone give me a paper bag. I need to hyperventilate.

So, this morning we arrived at Memorial Sloan Kettering Cancer Center (MSKCC) to meet with Ben’s treatment team. First, we met with the financial guy. Then we met with Ben’s social worker. She is in charge of our Ronald McDonald stay and helping us apply for financial aid. Then we met Dr. Kim Kramer. She examined Ben and chatted with us at length about her thoughts. She said that since Ben relapsed so late after initial therapy (four years after being declared to have no evidence of disease) and the fact that it came back in just the one spot with no bone marrow involvement, she believes that this 3F8 therapy will CURE MY BEAN!!!!! Someone give me a paper bag. I’m hyperventilating (in a good way).

So, tomorrow Ben will have an Echocardiogram and an MIBG injection. Then Friday he will have his MIBG scan, a CT scan, and then a four point bone marrow biopsy (which takes a cross-section of bone from the front AND back of the hips. He’ll be sedated for that last part and probably be a bit sore for the rest of the day.

What will come next depends on the outcome of his scans. If he has a little bit of disease left over, he’ll be scheduled for surgery (with Dr. LaQuaglia here in NYC), a round of high dose chemotherapy (in Denver), and then start the 3F8 antibody therapy AFTER he recovers (back in NYC). If he has no disease at all, then he’ll be scheduled for a round of high dose chemotherapy (in Denver) and then start the 3F8 antibody (in NYC). We weren’t expecting having to put him through more chemo, but Dr. Kramer says that the antibody therapy will work better if he’s had recent chemo. It’s going to be a bummer though, because his hair has just started to come back in AND this is going to knock him out big time. I was hoping for no more hospital stays, but this round will mandate that we’re inpatient. OH WELL. HE’S CURABLE!!!!!! We’ll take the positives where we can get them.

So, we have a long way to go. But we want this antibody therapy to work so we’ll do what we have to in order to get this kid of mine back on the road to normalcy. It just can’t happen soon enough.

Best news I’ve heard since Ben’s relapse diagnosis last summer!

snuggie pub crawl BENefit

The evening finally arrived and I had my zebra Snuggie all ready to go, along with my camera bag and a few of my bestest buds. We were off to the big event…”what event?,” you ask. Why, the Snuggie Pub Crawl BENefit to raise money for our dear friends, the Brewer Family. Their eight year old son, Benjamin, relapsed with neuroblastoma last summer and now that surgery, chemo and radiation are behind him he will be on his way to NYC this week for antibody therapy. These treatments are still somewhat experimental and each child reacts differently. Depending on how well Ben does, he and his family will need to travel back and forth from Denver to Manhattan approximately 6-12 times. Hence, the fundraiser. OK, enough of the technical jargon, let’s get to the photos!

Oh wait, I have to at least explain the festivities so the photos will make sense….it was mandatory that everyone wear a Snuggie. It was mandatory that if you wanted to ride on the buses, you had to fork over 50 bucks to the Pink Princess. It was encouraged that everyone bring some extra cash for “party favors” (in the form of red or orange jello shots) and raffle tickets on the road trips between stops. At the first location, we were treated to a pizza buffet and at each of the three destinations, there was a special beverage named in Ben’s honor; like Ben’s Frosty Top, The Benjamin Bomb and Kick Some Cancer Ass. OK, OK, I’ll let the photos tell the rest of the story…

Oh, but I have to fill you in on this character, too – ever since Ben’s relapse was diagnosed, his recovery has taken on a theme of its own. It’s been coined “Ben kicking some cancer butt” – so his Uncle Darrell (Ben’s godfather) totally dressed for the occasion!

Ben’s dad, the Pink Princess, and Ben’s mom…

Our main man, Ben, and his sweet little sister, Madeline (another pink princess)!

Ben and his mama…

Madeline and her Aunt Patty – the two prettiest pink princesses I know!

First stop…

Shoutin’ out some raffle prize winners…

Ben, thanking the crowd for coming and hoping “everyone enjoys their raffle prizes.”

At this point in the program, it was time for the Brewer Family to head out while the rest of the Snuggies partied on. We are all praying for safe travels and better days ahead for Ben and his family. We love you guys!

saturday satire

Here I am, sitting at my desk with coffee pot perking in the background, thinking to myself that it’s so good to be alive and living in Ohio. I know, Ohio is not usually the first place most people think of when they dream of a vacation oasis or a warm place to retire but the more I see of the world around me, the more I like this little piece of earth I call home. Especially with the crazy storms brewing off the west coast and the horrible mess in earthquake-ravaged Haiti. Then there’s the sand storms in the deserts of Iraq and the 100+ temperatures in Australia. We Ohioans don’t know how good we have it sometimes. I’ve also noticed I’ve been complaining a lot about the winter rain and clouds and 30 degree weather here in the big city of Columbus (so wimpy, right?) so I’m going to take a moment and rattle off a few statistics I found that truly make me appreciate my surroundings:

1. The last natural disaster (if you can call it that) that I can recall in my fair city was in 2008, when Hurricane Ike hit Galveston, TX and then decided he wasn’t done there, taking everything out in his path all the way up into New England. We just happened to be on his party route – yes, there was a lot of damage. No, hundreds of thousands of people did not die and tent cities did not spring up in its aftermath.

2. Risk and Insurance magazine put out this list in 2005 of the 10 safest U.S. cities to live in with CowTown ranked as #4 (I like a nice even number). The perils that are included in the analysis are hurricanes, earthquakes, terrorism, severe thunderstorms, and winter storms.

1. Sacramento, CA
2. Phoenix, AZ
3. Rochester, NY
4. Columbus, OH
5. Buffalo, NY
6. Cincinnati, OH
7. Grand Rapids, MI
8. San Diego, CA
9. Pittsburgh, PA
10. Hartford, CT

3. Among the major cities in O-H-I-O, Columbus, in the central region, has an annual mean temperature of 51°F, with a normal maximum of 61°F and a normal minimum of 42°F. I don’t see any 100’s or -35’s in those numbers, do you?

4. My son lives in Las Vegas and for the second year in a row, it has snowed there. Not just the pretty snow-capped mountains that look beautiful on postcards, but snow that accumulated and turned the city upside down. I had to laugh when I visited there a few years ago in December and it snowed big fluffy flakes – I was taking a taxi from Caesar’s Palace to my hotel off the Strip and the cab driver had no clue about how to drive in the snow. I said, “pull over, Pal, I’ll take it from here.”

5. We get to enjoy (yes, drink that word in, folks!) the most wonderful four seasons that Mother Nature has to offer, with very little fanfare. I mean, look…it snows here in the winter (it’s SUPPOSED to snow in the winter), grass turns a lush green in the Spring (remember what it felt like to run barefoot through that stuff? I do, I do!), there’s good, old-fashioned swimming in the summer (along with baseball and apple pie), and Fall is my absolute fav time of year (brilliant leaves falling from the trees and apple cider on the deck). You miss all this living in Hawaii or Mississippi or Barbados.

My heart aches for Haiti, just as it ached for New Orleans and Thailand. The devastation will be felt for many years to come, And it’s really, really hard to comprehend the magnitude of so much suffering from the safety and security of my Columbus, Ohio living room but I pray that we and the rest of our world will continue coming to their aid, long after CNN stops covering it.

Kuddos to Columbus. You really are my kind of town.

sidetracked

It never fails…I start one project and immediately get sidetracked by something else. And it’s not just, “oh, I think I’ll move that shelf from here to there” while I’m cleaning out the basement but more like, “I think I’ll carry all this scrapbooking stuff that I dumped down here a few years ago upstairs and make a little photo book to send to my son.” Like right now. Forget the dark, smelly basement. Who cares that I only tackled one measly shelf before my right brain took over, saying in a very loud voice, “No cave dwelling for us – move towards the light! And take all this creative and way more fun stuff up with you!”

Before long I found myself printing photos…

pulling sheets of paper, gathering my ribbon and scissors, picking out the perfect pens…

and completely blowing off the subterranean shelf project. It never fails and boy am I glad!

ai chihuahuah!

So this is my son’s adorable dog, Sheela. I have this very photo as a screen saver on my Mac so I can look into those sweet, innocent eyes every morning when I get up and come downstairs – what better way to begin my day. (And a cup of my favorite hazelnut coffee just adds to the adorableness.)

vegas withdrawal

I’ve been back home for a month now and am feeling super strung out – the withdrawal symptoms just aren’t letting up…must post more trip photos:

Like this view of the canyon near Lucas’ house and a day filled with sunshine.

Soooooo missing these boys…

and the beauty…

Must find a way to get back out there. Robbing a bank is out – I can’t stand anything pulled tight over my head. Selling all my possessions and buying a one-way bus ticket wouldn’t go over well with my husband. Pretending I’m a travel agent and booking myself a “trip of a lifetime” isn’t realistic. Maybe I’ll prostitute my body for extra cash – uh, no. Have you seen this body lately?

indomitable husband

Mike walked in from work tonight, changed into his jeans, bundled back up, headed outside, and started shoveling. I’m sorry but I couldn’t stop laughing.